Thursday, February 21, 2008

Neuro visit

The girls had an appointment with their neuro on Wednesday. He was very pleased to see how well they were both doing. We asked when Bree would be able to come off the AED. He told us he wasn't in any hurry because if she had a seizure her development could fall back again. He also agreed with me to hold off on vaccinations until they're at least two years old. He sees no need for an EEG at this time but if we do suspect seizure activity he will request one. He also reminded us that if we would like to be referred to Shands in Gainsville or Miami he would be glad to. He wants us to know that we've done everything we could to diagnose the girls. We also asked about seeing a neuro-opthomologist. He told us there wouldn't be much they could tell us that he hasn't. So the appt. went very well. We will see him again in July.

Both the girls are making progress when it comes to sitting. Paige sat last night for almost two minutes. The therapist are working with them to stop the extension (back-arching). Paige was able to pick up two pegs from a peg board and put them in a bucket. Her hand/eye coordination is really starting to come along. Bree was able to push herself onto all fours with so light pressure on her bottom. While it only last for a few second it's still a milestone to me. They are being evaluted by the PT for their 6 month check. They have been approved for continued services through EI for another 6 months. We're still waiting to hear when they will be receiving their Bottoms-Up seat as well as the shoe inserts.

Water Therapy continues to be going well. Last week the girls were able to relax their arm for the first time, as well as be completely submerged without getting upset. They absolutely love the water and it's fun being involved in the process. Saturdays are becoming our favorite day of the week and I may start Connor with swim lessons. I know he would love it and will learn quickly.

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