Paige Comes Home!

Sorry it's been so long since my last entry. We're still working on a new computer so I'm using my mom's until then. Paige came home on Friday evening. She was discharged from ICU with some concern with her blood pressure. She was given Lasix to get rid of some of the fluid retention which helped temporarily. If the bp continues to be high they will start her on Clomazapene. Her ACTH was weaned sooner as a result and will receive her last injection today. Bree still has a week left. They are doing very well and have become more responsive and vocal. Both are cooing and laughing and will turn their head towards voices. Still no eye contact or tracking but we're excited with the little improvement we've seen. Bree has been a little hoarse and her cries are barely heard sometimes. She had a wet chest x-ray on Tuesday that came back negative so her pediatrician would like her to see her pulmonologist for an endoscopy to check her vocal chords and esophogus for infection. If it's not one thing it's another. Thursday we meet with Early Intervention. The meeting will consist of the Physical Therapist, Occupational Therapist, Speech Therapist, and Developmental Phsycologist. The girls are at a two month old level as far as milestones and those therapist will work with them to get caught up with things they have yet to accomplish. Right now we're hopeful that everything will be okay. We still have many more doctors to see and each week brings something new. I promise to keep everyone as up-to-date as possible. Thank you for all your positive comments and support. It means so much to all of us!