Our visit to the Neurologist

Today was our rescheduled visit with Dr. Desai, the girls neurologist. We've been waiting for a week to find out the results to the girls last EEG. He examined the girls and told us he was very pleased to see their improvement after the ACTH treatment. The girls have been laughing and cooing, they're starting to sit with help and are eating solid foods on a regular basis. The good news is the hypsarrythmias (brain damaging seizure activity) are no longer occuring. The bad news is that both Paige and Bree are showing seizure activity in the right occipital lobe (the part of the brain that controls vision). Paige's spikes were mild enough to hold off on medication. It is unknown when she will have her first epileptic seizure-it could be days, weeks, or months. So for now we will just watch her for sign of a seizure and go from there. Bree is a different story. Her spikes are more frequent and stronger. The doctor doesn't feel comfortable waiting on her so he prescribed Trileptal-an anti-seizure medication she will be on for the rest of her life. We're hoping she will have success with this first drug. For now we'll wait and see-we're scheduled to see the doctor again in two months.