Sunday, July 15, 2007

Seizure Free!!!

The girls have been seizure free for a week and a half now. Their irritability is really showing. Their fussy most of the day and don't sleep well at night. Their eating every 2 1/2 to 3 hours now. Our Home Health nurse coming twice a week now and I take the girls once a week to Bert Fish Hosptial for blood work. Most of my free time has been spent calling all their doctors to make follow-up appointments and repeat testing. I've also started the process of getting the girls Early Intervention with Early Steps. They will have Physical Therapy (PT), Occupational Therapy (OT), Speech Therapy (ST), and a developmental phychologist. We meet with all of them on August 9. The girls are having their third EEG on the 18 at Arnold Palmer. We see Dr. Desai (neurologist) on the 23 and Dr. Trumble (neurosurgeon) on the 25. All of their doctors are in Orlando, 1 1/2 hours away, so most of our time is spent driving back and forth. We're hoping the EEG improves enough so they can begin to ween off the meds.

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