A Beautiful Sight

Yesterday the girls had their appointment with Dr. Blumenfeld, a neuro-opthomologist who is partners with Dr. Gold, the girls opthomologist. The appointment went great...the doctor was wonderful, and the girls are FINALLY getting treatment for their vision problems. Turns our the reason for the turning in of their eyes is they are far-sighted. They also have an astigmatism as well. The doctor has decided to prescribe glasses to the girls. He wants them to wear them for three months and come back to see if the crossing has improved. If not, he will talk about patching and if that does not work by the time they are three, he will discuss surgery. But for now, I'm just excited that we're doing something and that their is a "cure". As for what the glasses will look like, I have posted a picture as well. Paige's will be pink, of course. The only other color for Bree was a baby blue...no purple! One surprising thing about all of this is that Paige's prescription is much stronger than Bree's...we always thought Paige's vision was stronger.

Therapy Evaluations

The girls had their physical and occupational therapy evals last week. They both have showed improvement over the past 6 months and have meet that goals that were set. These are the age equivilents that the girls scored under the PDMS-2.
___________________Paige_________Bree__________

Stationary----------------11 months---------8 months

Locomotion---------------9 months----------7 months

Object Manipulation------13 months---------12 months

Long term goals:
Paige - to walk four step without assistance
Bree - to sit unassisted and play with a toy for thirty minutes

Short term goals:
Paige - cruise left and right five feet with verbal cuing and to creep with reciprocal pattern
Bree - be able to move into and out of sitting without assistance and creep forward five feet without assistance.

My personal goal for the girls is to see them walk down the aisle next October in our wedding. I am confident that will happen.

Our Wedding Website

I decided to create a website with all the information and ideas on the wedding planning. We would like all of our friends and family to visit the site and let us know what you think.

The link : Our Wedding

Video of Paige's Frog hop

Visit with the Neurosurgeon

Today the girls had an appointment with Dr. Trumble to review the scans done two weeks ago. Paige's CT scan came back with improvement of the metopic synostosis. She still has a slight malformation on the left side of her skull but will not need further surgery or treatment. She will follow-up with another CT in a year. Bree's MRI did not produce clear images because of her wiggling and moving. They were able to note that the sub-arachnoid spaces had decreased, so from a surgical standpoint she has been cleared from Dr. Trumble's care. However, in her first MRI it was noted that she had Agenesis of the Corpus Callosum (ACC - absence of the tissue that connects the lobes of the brain). This MRI, though unclear due to the movements she made during the scan, showed no signs of a corpus callosum. It was suggested that we contact her neurologist to speak with him about requesting another MRI with sedation to verify the findings. ACC is not life threating in and of itself, but when you add the diagnoses of Infantile Spasms and vision problems, we could be dealing with a bigger problem. Since the day they were diagnosed I will never forget the mentioning of Aicardi Syndrome. She could have all of these problems and not have that syndrome, but it will always sit in the back of my mind. So we will see what the neuro-opthomolgist and follow-up MRI says before I start to worry.