Once a room was available at Arnold Palmer, the EVAC arrived to transport her from Bert Fish. Pete rode with her and I followed in the car. By the time we arrived a APH Paige was starting to wake up and ask for food. By now it was about 8:30pm and she hadn't eatten since the night before, so she was pretty hungry. We had to wait for the dr. to come in and okay her to eat...the longest 30 minutes ever. They asked us every question under the sun and finally let Paige eat. They planned on doing a MRI and EEG that night. It wasn't until 1am that she went in for her MRI, so she was going to have to wait till the morning for the EEG. Thankfully she slept through it and did not need sedation. If she needed to be sedated we would have needed to wait till the following day for the EEG; the sedation would have altered the results.
Tuesday morning a neurologist who was on call came in to discuss the result of the MRI. He explained that there was a significate change since her last one in 2007. The white matter of the brain had decreased and the Corpus Callosum was very thin. He was a little hesitant to discuss i detail what all of that meant and suggested we wait until the EEG results were in before we ask anymore question. That left us with a sickening feeling in our stomachs.
By 5pm they were finally able to come to the room and perform the EEG. Paige slept through the wires being taped to her head and the 20 minute reading. We weren't even able to arouse her for the strobe light. She was a tired little girl.
Around 8:30pm Paige's neurologist, Dr. Desai, was able to review all the report. He said he was pleased with what he saw on the EEG; there were a few spikes in her right frontal lobe and her sleep pattern was normal. The MRI results were what he expected for someone with the deficits that Paige has. She showed overall atrophy but nothing that he didn't expect to see. It's not good news but nothing life threatening. He started her on Lamictal, the same medication Bree is on, and is titraiting over 5 weeks to get her from 5mg to 25mg. He said as long as the evening continued to be uneventful and the doctor that does their rounds in the morning okay them, she could go home Wednesday.
That night was uneventful and by the time the doctor made her rounds in the morning, Paige was about 90% back to her old self. We were finally released around 12pm and told to follow up with our primary in a week and neuro in a couple of months.
So far, Paige has returned to normal and the medication is not causing any problems. We always knew the seizures would return, we just never knew when our to what extent. It's hard to go back to the way things were...I'm constantly watching for signs one is coming. Everytime I hear her cry I worry she's having another one. What happens if she has another and she's standing up and falls? I'm so scared to let her leave my sight. What's worst is that this could still happen to Bree. I won't let this rule our lives, but for the next few days, I know it will consume me. So here are a few pictures I took while we were at Arnold Palmer.
Slept through the whole EEG
Feeling better
Tuesday morning a neurologist who was on call came in to discuss the result of the MRI. He explained that there was a significate change since her last one in 2007. The white matter of the brain had decreased and the Corpus Callosum was very thin. He was a little hesitant to discuss i detail what all of that meant and suggested we wait until the EEG results were in before we ask anymore question. That left us with a sickening feeling in our stomachs.
By 5pm they were finally able to come to the room and perform the EEG. Paige slept through the wires being taped to her head and the 20 minute reading. We weren't even able to arouse her for the strobe light. She was a tired little girl.
Around 8:30pm Paige's neurologist, Dr. Desai, was able to review all the report. He said he was pleased with what he saw on the EEG; there were a few spikes in her right frontal lobe and her sleep pattern was normal. The MRI results were what he expected for someone with the deficits that Paige has. She showed overall atrophy but nothing that he didn't expect to see. It's not good news but nothing life threatening. He started her on Lamictal, the same medication Bree is on, and is titraiting over 5 weeks to get her from 5mg to 25mg. He said as long as the evening continued to be uneventful and the doctor that does their rounds in the morning okay them, she could go home Wednesday.
That night was uneventful and by the time the doctor made her rounds in the morning, Paige was about 90% back to her old self. We were finally released around 12pm and told to follow up with our primary in a week and neuro in a couple of months.
So far, Paige has returned to normal and the medication is not causing any problems. We always knew the seizures would return, we just never knew when our to what extent. It's hard to go back to the way things were...I'm constantly watching for signs one is coming. Everytime I hear her cry I worry she's having another one. What happens if she has another and she's standing up and falls? I'm so scared to let her leave my sight. What's worst is that this could still happen to Bree. I won't let this rule our lives, but for the next few days, I know it will consume me. So here are a few pictures I took while we were at Arnold Palmer.
Paige still a little dopey from the meds.
Paige's room
Paige playing in her crib
Toys the hospital provides
Slept through the whole EEG
All the electrodes
After the EEG
Feeling better
All her IVs
What a trooper!
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