Improved EEG

We saw the neurologist today. There was good news - their EEG improved enough to begin weening the meds. He said starting Wednesday they could go down to 10units twice a day. He wants a repeat EEG with sedation after the girls come off their meds completely. The Opthomologist told us that their eyes were healthy and that their vision problems were neurological. They don't focus or track things infront of them and their eyes will sometime roll to the back of their head. The neuro. called it Cortical Visual Impairment (CVI). He said with time their vision could improve but until then we will not know how well they'll see; if at all. The girls have also become very spastic (were the muscles are very stiff and their bodies become rigid and flexed in a backward arch). We're hoping it goes away with the discontinue of the meds. If not Cerebral Palsy may be our next issue. We won't think about that now. Wednesday we see the neurosurgeon to discuss Paige's surgery and the bands thar the girls will have to wear to mold their heads due to the plagiocephaly (flattening of the back of the skull common in premmie -NICU- babies). Paige and Bree have become so swollen froms the meds but their chubby cheeks are so cute. The picture is Paige - all cheeks!