Diagnoses of Infantile Spasms

This is my first entry and a very important one. Our girls are at Arnold Palmer in Orlando being treated for Infantile Spasms. They had a busy day of testing: EEGs, CT scans, and more blood test than you can imagine. The girls neurologist, Dr. Prashant Desai, was the doctor to formally diagnose them. He explained to us what to expect and gave us three options on how to treat the seizures. We decided to go with a medicine called ACTH. It's a naturally occuring hormone that is usually used as a first line of defense. There are several side effects such as swelling, high blood pressure, immuno-suppression, irritability, and sleeplessness. The girls will begin treatment tomorrow. He also found some abnormalities in their skull and told us the neurosurgeon would be by to see us tomorrow.